FOI 1988 Genetic Testing

I would like to request the following information from you by 31st October (20 working days) under the Freedom of Information Act in relation to your trusts provision of genetic screening and counselling to patients diagnosed with genetic haemochromatosis and their families.

 For the period 1 January 2015 to 31st December 2015 (or the most recent full 12 month period if more recent data is available) :

A. The number of patients diagnosed with genetic haemochromatosis who have been provided with genetic testing for haemochromatosis and/or genetic counselling in relation to their condition.

B. The number of marriage or civil partners of patients diagnosed with genetic haemochromatosis who have been provided with genetic testing for haemochromatosis and/or genetic counselling in relation to their partners’ condition.

C. The number of siblings of patients diagnosed with genetic haemochromatosis who have been provided with genetic testing for haemochromatosis and/or genetic counselling in relation to their sibling’s condition.

D. A copy of your protocol or pathway applicable to the provision of genetic testing/counselling for families of patients diagnosed with genetic haemochromatosis.

The Royal Surrey County Hospital NHS Foundation Trust does not provide either a genetic screening service or genetic counselling, therefore the Trust does not hold the data requested.  However, patients diagnosed with genetic haemochromatosis, the hospital uses AASLD guidelines for management of patients and treatment.  Advice is given to patients to have their first degree relatives checked and spouses where appropriate.

©2017 Royal Surrey County Hospital

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