1. The total number of children and young people diagnosed with cerebral palsy by Royal Surrey County NHS Foundation Trust within each of the last five years. In order to extrapolate the information specifically requested above, the Trust would need to scrutinize individual healthcare records and, therefore, the cost of compliance would exceed the appropriate limit under Section 12 of the Freedom of Information Act.
2. The total working-time equivalent (WTE) number of specialist staff employed by Royal Surrey County NHS Foundation Trust from the following disciplines, trained to work with children and young people with cerebral palsy:
a) Paediatric speech and language therapists – No paediatric SALT services are provided by the Royal Surrey County Hospital NHS Foundation Trust (RSCH) for this patient group.
b) Paediatric physiotherapists – No paediatric physiotherapy services are provided by the RSCH for this patient group.
c) Paediatric occupational therapists – No paediatric occupational therapy services are provided by the RSCH for this patient group.
3.The total working-time equivalent (WTE) number of:
a) Health visitors Zero
b) Specialist health visitors for children with special needs Zero
employed by Royal Surrey County NHS Foundation Trust.
4. A copy of your care pathway for children and young people with cerebral palsy. The embedded slide below details the Trust’s CDC service pathway which includes diagnosis and management of cerebral palsy – a CDC paediatrician would give a diagnosis after a clinic appointment, with input from physiotherapy services. Depending on the severity of the child’s difficulties there may be involvement from and liaison with a huge range of services. The second slide shows an example of the people that the RSCH CDC paediatrician would be liaising with for a very complex child with cerebral palsy. Not all children with cerebral palsy are this complex, however, and their care would be tailored to their individual needs.
5. A copy of your service framework for children and young people with cerebral palsy.
See 4. above. The Trust would also work with the relevant NICE guidance:
- Spasticity in children and young people
Selective dorsal rhizotomy for spasticity in cerebral palsy
6. Whether there is a specific timescale set out in your care pathway for referral for diagnosis of cerebral palsy, from the point of the formal identification of symptoms. Where there are concerns about possible cerebral palsy the Trust would expect a child to be referred to the child development team; they would be seen by a CDC paediatrician ideally within 2 months who would then make a diagnosis, if appropriate, and refer on to other services and work with those other services.
7. An overview of training and advice provided by Royal Surrey County NHS Foundation Trust for health professionals on identifying and referring children with cerebral palsy. Guidelines have been developed by physiotherapists and RSCH paediatricians with respect to when children with motor concerns should be referred. These have been distributed to hospital paediatricians, GPs and Health Visitors. Training has been provided for GPs and Health Visitors on identification of children with developmental concerns including motor difficulties – the most recent training was delivered to the Health Visitor team in October 2015.